HEY! YOU! MEDIA! Top 5 Notes to Anderson Cooper Regarding His 60 Minutes Hit Piece That I Shot B-Roll For Once Upon a Time When It Was Going To Be About the ADA’s 25th

60 Minutes Came to the Bay Area, birthplace of the Independent Living movement — a largely unknown chapter of US civil rights history — for footage for a piece about the 25th anniversary of the Americans with Disabilities Act (ADA).
They filmed me, moving about the Ed Roberts Campus (ERC), where I work at Disability Rights Education & Defense Fund (DREDF), an ERC founding partner.
They filmed other members of the cross-disability community.
And they used that footage to undermine and dishonor the law that made me — a woman with a disability — a full citizen in 1990.
60 Minutes came to OUR house, used us, and told the world people with disabilities are either dupes, greedy, or both.

Top 5 Notes to Anderson Cooper Regarding His 60 Minutes Hit Piece That I Shot B-Roll For Once Upon a Time When It Was Going To Be About the ADA’s 25th

Segment also provides excellent instruction in “How to add insult to injury” by failing to caption its online streaming video

1. If an access violation is so obvious it can be found through Google’s aerial view, then, yeah, I expect a business owner to be able to find it.

Continue reading

And Now a Word From the FuckAbilityTM Research Council on the Series #Speechless

FuckAbility™ Research Council to Speechless: You Had Us At “Trash Ramp”

Matt Damon calls on Speechless producers to be more inclusive of nondisabled white male actors

Frankly, the Speechless pilot could end with Minnie Driver’s character pulling a Divine and it would simply convey the amount of shit people with disabilities and their families are expected to eat every day.

(Highway, Heaven) After a cruel, cruel summer that included When Khaleesi Met Romanticide and a profoundly fucked up little number called Don’t Breathe, the autumn winds are blowing our sad, tragic little skirts right up with Speechless.

Continue reading

#WSPD2016: Suicide Is a Problem, Not a Solution for Living With a Disability. Yup, Even One That’s Neuromuscular, Progressive, and Degenerative

September 10 is World Suicide Prevention Day. But for a disabled person like me,  it’s just not my day.

Increasingly:

What would be a “threat of self-harm” for you, is a “personal choice” for me.

What calls for an intervention for you, calls for a pre-suicide party for me.

Your movie is It’s a Wonderful Life. My movie is It’s a Wonderful Death.

When it comes to people like me, suicide is rapidly becoming normalized. Or more exactly, suicide is being erased through re-branding. “It’s not ‘suicide’! It’s ‘ending your life on your own terms’!”

But I want a great pre-end of life. I want to live on my own terms.Ingrid posing with her Respironics Bi-Pap S/T

Continue reading

HEY! YOU! MEDIA!: Let’s Make Suicide Awareness Month and World Suicide Prevention Day Inclusive of People With Disabilities

5.  Why is suicide being presented as a solution, rather than a problem, when the people involved have disabilities?

September is Suicide Awareness Month and September 10 is World Suicide Prevention Day. I’m writing this because media coverage over the past year alone seems to warrant an explicit reminder that:

  • We don’t lack awareness of people with disabilities committing suicide; we do allow vulnerable people to feel shame over chronic pain and depression.
  • Our suicides deserve prevention, not encouragement and cultural misrepresentation, as in films such as Me Before You.

What’s the context beyond the medical? What are the underlying attitudes guiding how the media’s coverage of people with disabilities who have committed suicide or who are planning to do so?

HEY! YOU! MEDIA! Can We Please Make Suicide Awareness Month & World Suicide Prevention Day Inclusive Events? Here's a fresh pitch for your editors: WTF are people glomming onto a This is, as you emphasize, their choice.

But please stop asking me, or any other individual with a stereotypically scary disability (progressive! degenerative! neuromuscular!), “So, what do you think about what this particular person’s doing?”

My opinion is irrelevant. Stop setting me up to be insensitive either to a suicidal person or their surviving family members.

Instead, start covering the true scope of the story. Refusing to look beyond the purely personal dimension of suicide is irresponsible when articles about people with disabilities choosing suicide are fast becoming — in the words of your craft — trend pieces.

The role of the media is essential — your role is to differentiate between the personal story of an individual, and the investigation and analysis of that singular story within a broader social context.

Here are questions that deserve investigation, analysis, and promotion:
1. What is it about our healthcare systems that have eroded faith in their ability to alleviate physical and emotional pain?

Continue reading

Depression and Suicide Do Not Come Standard With the Progressive Disability Package

A few weeks ago, Alice Wong asked me, a fellow person living with a progressive neuromuscular disease (NMD), how I would respond to someone with an NMD who was saying they wanted to commit suicide.  This was my answer.

Depression is not a standard feature of living with a neuromuscular disease (NMD) or other progressive disability.Depression & Suicide Do Not Come Standard With the Progressive Disability Package Depression is not a standard feature of living with a neuromuscular disease (NMD) or other progressive disability. Do people living with disabilities also experience depression? Yes. Anyone can have depression and you are no different in deserving treatment and relief for it. Thinking that you alone can help yourself with your depression through suicide is a tragic form of “overcoming.” If finding the right treatment for your depression proves difficult, it’s not proof that your disability makes you different from other people. It’s not proof that, for you, suicide is a rational choice. No. It’s proof that depression is difficult to treat for vast numbers of people. Like you. It's free and confidential to contact the National Suicide Prevention Lifeline anytime. You are not a medical prognosis or a checklist of functional abilities. You're a person. Who is in terrible pain now and deserves relief. Like everybody else. If you're in crisis: 1-800-273-TALK (8255), 1-800-799-4TTY (4889) https://www.facebook.com/800273talk/ @800273TALK © 2016 talesfromthecripblog.com

Do people living with disabilities also experience depression? Yes. Anyone can have depression and you are no different in deserving treatment and relief for it. Thinking that you alone can help yourself with your depression through suicide is a tragic form of “overcoming.

If finding the right treatment for your depression proves difficult, it’s not proof that your disability makes you different from other people.

It’s not proof that, for you, suicide is a rational choice. No. It’s proof that depression is difficult to treat for vast numbers of people. Like you.

It’s free and confidential to contact the National Suicide Prevention Lifeline anytime. You are not a medical prognosis or a checklist of functional abilities. You’re a person. Who is in terrible pain now and deserves relief.

If you’re in crisis:

1-800-273-TALK (8255) , 1-800-799-4TTY (4889)
@800273TALK
 

#CripTheVote: You Have Hillary Clinton to Blame for This Blog Post

For the first time in my 50 years on July 28, 2016, I heard my disabled childhood described through the civil rights lens by a presidential candidate, Hillary Clinton. She centered my childhood where I would have: on education and public schools.

It’s difficult to explain the magnitude of hearing my disability identity described in the language of equal rights and not special needs. As meaningful as it was to see a woman accepting the nomination, the tectonic shift I felt was in Clinton accepting me as I am: as a person who deserves respect and can serve the greater good. Not as a diagnosis who has nothing to give or a vote to cast. Certainly not as a target to mock whose vote is irrelevant. Because I have gained my right to an education, I gladly accept the responsibility that comes with answering these two questions:
What do I want to contribute to that is bigger than myself? What is it that I have to contribute?
In using the education that Hillary Clinton and other disability rights advocates fought for, I have a shot at becoming a role model who works together with others rather than being labeled an “inspiration” who is kept at a distance.
The story of childhood is the story of education. The access to and quality of education determines whether that story is one you want to retell over and over, or one that threatens to scare you into silence. The school-to-prison pipeline and the violence that students of color with disabilities experience in the name of “discipline” are the education issues that need urgent action today. I appreciate Clinton’s past work because I see potential in it for protecting the rights of more children and youth with disabilities.
B/w photo of a little boy and younger girl sitting. Both smile and the boy is giving the girl a mischievous sideways glance.

The author and her older brother. Hillary Clinton said, “Every kid with a disability has the right to go to school.” That was an idea – not the law – in 1967 when this photo was taken. Three years later, this little girl could not start first grade at the neighborhood school where her older brother went. The school had a pet rabbit named Pugsly. Inclusion: DENIED. An education: DENIED. A bunny to pet: DENIED.

Continue reading

People With Disabilities to Protest Movie “Me Before You” As “#MeBeforeEuthanasia in Berkeley, CA, Birthplace of the Disability Civil Rights Movement

The only thing “Me Before You” normalizes is a deadly double standard when it comes to suicide prevention and people with disabilities.

People in local cross-disability communities in association with Not Dead Yet(www.notdeadyet.org) are staging a protest at the Berkeley Shattuck Cinemas on Thursday, June 2, 2016, from 6:15PM-7:15PM PT. The purpose of this peaceful demonstration is to oppose the film’s ableist message that people with disabilities are better off dead, and that we are a burden to others. Protesters are organizing across the United States using hashtags such as #MeBeforeEuthanasia, #MeBeforeAbleism, and the film’s unintentionally ironic #LiveBoldly.

“Me Before You” is the latest Hollywood film to grossly misrepresent the lived experience of the majority of disabled people. In the film, a young, white, and wealthy man becomes disabled and falls in love with his “carer,” a young woman who has been hired by his family to cure his suicidal depression with romance.

Despite her opposition, however, the hero does the “honorable” thing by killing himself in Switzerland with the assistance of the pro-euthanasia organPromo image of Me Before You movie. Text: Protest Me Before You! Meet at Berkeley, CA Shattuck Cinemas 6/2, 6:15-7:15PM. "Me Before You is little more than a disability snuff move, giving audiences the message that if you're a disabled person, you're better off dead." #LiveBoldly? We already do! #MeBeforeEuthanasia In assoc with Not Dead Yet USAization Dignitas – leaving his fortune to her so she can move on without the “burden” of a disabled partner. Based on the best-selling novel of the same name, “Me Before You” is little more than a disability snuff film, giving audiences the message that if you’re a disabled person, you’re better off dead.

The narrative of “Me Before You” and the leaders of the team who brought it to the screen are perpetuating stereotypes that people with disabilities are still fighting against.

Three of the key damaging messages “Me Before You” advances are:

Disability is ugly. Thea Harrock, the film’s director, has said publicly that she made a calculated decision to not include visuals of the main character, a young, wealthy, white man who has sustained a spinal cord injury, using tools for daily living, such as lifts or hoists because they would make audiences “uncomfortable.”

 Disability = “It doesn’t get better.”Me Before You” denies the fluid nature of living with a disability, in which both levels of disability and adjustment change over time. Conflating one stage on a continuum of living – early post-trauma – with the entire lived experience is an error that a character might understandably make but it is inexcusable for the film to make the same mistake. Imagine if we told young people in the LGBT communities who are traumatized and depressed because of internalized stigma and a world full of homophobic barriers that suicide was a rational response.

Mental health services are not for people with disabilities. In a time when mental health services are undercut by radical losses in funding, “Me Before You” helps argue that they are unnecessary – and useless – interventions for people with disabilities. The conceit that a sexless romance with a pretty girl will in any way address the suicidal depression of a young man who has sustained a life-altering spinal cord injury is as ludicrous as it is harmful.

B/w photo of FDR and Eleanor Roosevelt in an open car. He is doffing a top hat. They are both grinning. Text reads "Fuck "Normal"!“Me Before You” insults audiences by presuming that they cannot handle the realities of disability. By casting an actor who does not have a visible disability, by reducing the complex emotions that come with transitioning to life as a disabled person to unimaginative clichés, and by removing all evidence of the economic and social barriers that people with disabilities battle, the film kills any potential for authentic drama. The director claims the goal of “normalizing” disability without any awareness that “normal” is a freighted concept to people with disabilities. The only thing “Me Before You’ normalizes is a deadly double standard when it comes to suicide prevention and people with disabilities.